Aug. 14, 2025
Caring Through Chaos: Lorena Llamas' Journey as a Daughter and Caregiver
Welcome back to Dementia Discussions. In this heartfelt episode, I sit down with my dental hygienist, Lorena Llamas, who opens up about a deeply personal journey—caring for her beloved father, recently diagnosed with Alzheimer’s. What started as small, everyday memory lapses soon led Lorena down a path of advocacy, navigating doctors, family dynamics, and the emotional rollercoaster of watching a parent change before your eyes.
Lorena shares tender stories about her dad's lively spirit, his close bond with family, and how a recent family cruise turned into a powerful wake-up call about the realities of dementia. We talk about everything from medical advocacy and caregiver burnout to finding humor in the hard moments and the importance of social connection. This conversation is full of heart, wisdom, and the kind of real talk that caregivers everywhere will relate to.
Episode Highlights:
[2:06] - Lorena introduces her father, a hardworking man with a big heart and a history of resilience.
[3:34] - The first signs of memory loss and how repeated questions raised red flags.
[6:33] - Struggles with getting a diagnosis and advocating through medical skepticism.
[10:50] - Family dynamics and the neurologist’s push for more frequent interaction.
[14:15] - Sweet memories and painful moments of forgetfulness begin to unfold.
[16:54] - A cruise trip becomes a wake-up call: wandering, confusion, and safety concerns.
[20:47] - The challenges of tracking and protecting a loved one with dementia.
[28:00] - Public outbursts, constant apologies, and navigating loss of social filters.
[36:11] - Lorena’s concerns about her mom’s emotional and physical toll as the primary caregiver.
[39:10] - Exploring adult day programs and activity options for increased socialization.
[43:44] - Watching long-term memory fade: the heartbreaking loss of a signature.
[49:26] - Coping through humor, family support, and holding on to moments of joy.
Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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He had me write a check for him quite a month ago, and I noticed him on a separate sheet of paper, like practicing his signature. Well, he came up with this beautiful signature where he even did, like a cute little happy face at the end.
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And he just,
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he forgot his son, how to do that.
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He says, he says, like me, Hi, is this okay? I'm like, yeah, it's okay, daddy, just whatever you can do, whatever you can do that that was another sad moment where it's like, Damn, he forgot his signature.
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Hello and welcome to season four of dementia discussions. I would really like to take a moment to thank the guests who were on this past year and to thank you the listener. I really could not do this show without you, and over the past couple of years, some of you have called me, so I'm encouraging more of you pick up the phone and call me. I'm accessible, and I'm so eager to hear your story. I'm at 310-362-8232, or you can email me at dementia discussions.net so again, thank you. I'm grateful for you and so looking forward to another year of us being together. You foreign Hello and welcome to dementia discussions, the podcast for and about caregivers today on the show, I'd like to welcome Lorena llamas. Lorena is my dental hygienist, and after my appointment, I found out that Lorena father has dementia, and she graciously agreed to come on the show. So Lorena, I don't know a whole lot more about you, and I look forward to getting to know you. So welcome to the show. It's great to have you.
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Thank
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you. Thank you for having me and allowing me to talk about my daddy.
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Oh, absolutely, you know, tell us a little bit about your dad. Like, what was his profession in life? Since I know nothing about him,
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yeah, he was kind of like a jack of all trades. He mainly worked in maintenance, 16 things here and there in different buildings, and did some gardening to make extra money. He worked on cars.
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Sometimes he was the type that, on the weekends, he was always working on his cars with, like the really abrasive fingertips and the black fingernails from working on his cars and doing His work, it's it's gonna be hard for me. That's okay, my daddy, he's always been a hard worker. Unfortunately, he got into a really bad accident in April of 93 and he hasn't been working since he was badly injured. You know, he was going to come out for 24 hours and in and out of consciousness for like two, two full weeks. But you know, thank God we still have him here over 30 years later. But you know, you would still keep himself busy like doing maintenance work around the house, fixing everything, putting things up till recently, he started with his back, and few years ago, and recently he had surgery.
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How long ago was it that you noticed he had trouble with his memory? So
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I noticed, I'd like to say it's been a group over a year and a half. I'd like to say about two years ago. You know, we we've been in this house for five and a half years ago, and he likes to sip on the key line Mihawk, where are your little shot glasses? Same spot as always? And then two or three times he asked my dad, either in the same spot as always, that little cabinet up there? Okay, that was one thing. And then another thing was, you know, when I would get to his house, it's like, he'd be the first one. I'd say hello to, it's like, aren't you gonna say hello to your father? Like, Daddy, you're the first one. I said hello to. Like, No, you didn't.
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I'm like, Yeah, I did. I said you're just making an excuse because you want me to kiss you again. So honestly, after like the fourth time, I just said, No, this is this isn't right, and he did it to my sister in law. That's when I finally decided, Okay, that's it. I'm gonna make an appointment to get him job. And
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yeah, so he lives with you, or he does. He lives with you.
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Yeah, he he lives with my mom and my sister, but I'm the one that's like taking him to his all his appointments when his primary doctor is in downtown. That's not far, but his neurologist is in Burbank, and his surgeon for his back, she's. In Montebello. Not sure if you're familiar with
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that city. And does he live close to you?
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He looks really close. He's about, I'd like to say about two miles. Oh, so two months from here, they're close to you. Yeah, yeah, yeah.
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They're close enough to where we can see more often, but unfortunately, not close enough to where I can, like, go check up on him daily. And I think that's been a bigger struggle making sure that he's taking his meds. You know, I'm a timely manner now I'm depending on my sister to do so my mom, you know, I got him a little medicine case. That's the Monday through Sunday, AM, PM, and even then I question whether it's being taken care of properly.
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But, I mean, I'm doing what I can, where I am, you know,
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absolutely.
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Yeah. So just go back a little bit. So you, he was asking you repeated questions, and you started to think, okay, something's not right here.
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Something's not right, yeah. And so you made an appointment with his doctor,
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with his primary doctor. He had gone to the doctor a lot of the times. He has muscular atrophy on his right shoulder, and he kept on going back. And when I went to the doctor with him, he's like, Oh, my shoulder, my shoulder.
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And he sounded frustrated. Like, don't, don't, you know, you know you're losing function of your muscles, and you've came many times for the same thing, and we always tell you the same thing.
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And that's when I told the doctor, well, that's actually the reason why I'm
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here with him, because he was going to the doctor by himself. Yeah,
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he was going to the doctor by himself. Or my mom goes, would go with him a lot of times, but either she'd wait in the reception room or she just almost didn't like she's not putting two and two together.
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You know, that was a frustrating visit, because when I asked his doctor, I told him that I wanted to get him tested for Alzheimer's, his response to me was like, Well, you know, there's nothing you can do about it. And he shrugged his shoulders and shook his head, yeah, right, yeah, that that was frustrating. I just, you know, took a deep breath in, and I just said, you know, I I understand, but if we catch it early enough, maybe meds can prolong it, or just to get us prepared for what's coming, you know. So that's how the ball started getting rolling with him. This was about, I'd like to say about September 23
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Okay, so, yeah, a couple of years ago,
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yeah, yeah.
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That's when I really started getting the ball rolling. And took the MRI, and, you know, there they did show that there was a bit of shrinkage in the brain. At first he was diagnosed with just dementia. But a couple of visits ago, when I explained to the neurologist that, unfortunately, he is declining fairly quickly, that's when the doctor said, Okay, I think at this point we, we, we're going to call it Alzheimer's.
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And did they put him on any of the medications?
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Or
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he is on two different medications. Second one, I can't recall the name for it, but the first one is mementing,
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so probably Aricept, maybe Aricept,
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and maybe, honestly, I don't remember the last. That's the I can remember most of the names of all his medicines. About the new one for the dementia is the one I can't remember, or Alzheimer's, but um, doctor said, unfortunately, he's added smacks with his meds.
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So
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it sounds like it took some pushing for you to, like, some advocating for you to get him diagnosed. Is that
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right? Yeah. I mean, you know, when you're being told like there's nothing you can do about it, it's like, I I understand
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that, but you still want to have you still want to know what's happening.
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Yeah, exactly, just and, like I said, even for us to know how to handle him in the future, what to do our own research what to expect, and you know, not just sit in our hands and figure out like, Okay, so what's going on,
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right? And was your mom seeing he was kind of repeating questions over and over again, or more confused or more forgetful than usual.
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She she had, but in her head, it was just like part of aging. I say, you know, that's all, and at this point, I feel like she's still somewhat in denial, you know? I mean, it's her, they've been married for 59 years. Oh, wow, this July, so I can see why she's in denial. You know, she's afraid of losing her lifelong partner.
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You know, you and your sister and my brothers, my brother is 10 years older than me, and my sister is five years.
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Is older than me, so it's three of you, it's three of us, and your sister lives with them, yeah, yeah. And your brother? Does he live nearby
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somewhat? He's about between five and six miles from them, yeah. So he does see us every week. We do Sunday dinners every weekend, whether it's at their house, or my brother's house or my house. He does that so he gets to see his family at least once a week. The neurologist said that he want us to go see him more often so he can have more interaction during the week versus just the one day a week. Because, you know, keep his mind going, keep it busy. I and unfortunately, I don't. It's not being done. I walked in as I feel like everybody should be able to. We have a fairly large family.
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Mom and Dad are brothers and sisters, or
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my father has two sisters. One lives in Venice, and the other one lives in Sylmar. The other one. She's a year older than him. She's almost 81 so, you know, she comes down and she can the youngest one, she doesn't drive, so she just says that, oh, she doesn't have a ride, so she doesn't
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come over. So the doctor wants more family interaction. But yeah, in reality, it's hard to, I mean, you're you have to be at the dentist office at 7am right?
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Yeah. So I'm, we've been trying to go, like, on Wednesdays, other than the Sunday interact after work, amen, yeah, yeah. So either because we're so close by, either I stop by and pick up my husband and my daughter, or they just meet me out there, and he likes it. He he loves his family. My daddy's the type that, um, my I have a 31 year old son, and he lives in San Jose, and whenever he sees him, whether it's in person or through, through FaceTime, he talks to him like a baby. You know? He's, yeah, so loving.
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He's like, Oh, my baby, I love you mama. He's, he's just, I think that's that's been the hardest part, knowing that he just loves his family so much, and the thought of him forgetting his family, I think that's for myself, hadn't been the hardest. Have there been times when he's forgotten who you are. No, no, not now, a couple of weeks ago, took him to urgent care for this rash he had, and he loves looking at like my nieces and nephews baby pictures and videos, and I had a wedding picture. It was sure it's 25 years old. You know, my husband and I are celebrating our 25th anniversary this month, and congratulations, thank you.
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And I showed him the picture. I said, Look daddy, Who Who are they? And I can see it in his face that he genuinely didn't recognize us. And like, who are they, Daddy, you don't you don't recognize them. You don't know who they are. And then, like, you could see it where he it like it dawned on him who it was, like, Are you kidding me?
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How am I not going to know who this is? It's you guys, you know. But I could tell that initially, he really didn't recognize us. And just recently, he didn't recognize my sister in law's nephew, who he's seen many, many times. He greeted him like he knew him because he recognized his face, but he could remember who he was.
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That's so hard, yeah, and that's yeah, so hard, yeah. I, I that was other than when we first started going through the process of getting diagnosed, and I think that was one of the that's been the most, the hardest part recently, because it's like he's starting to forget people, yeah, family members, yeah. I felt like he's like, we're being robbed time with him, you know, yeah. But my daddy, you know, he's the he becomes everybody's uncle. Oh, he has such a beautiful personality. He's so welcoming, like I said, he's so loving, you know, a he becomes everybody's uncle or everybody's Grandpa is everybody's Abuelita, abuelito.
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So interesting, very warm, wonderful man.
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He, he really is.
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Not just because he's my dad.
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He's, he really is. He is. He's always been a wonderful dad and playful, like, he pretends to box with the babies. You know, I remember growing up when we would go to the grocery store, like, you know, there's that little dip as you walk out of the he would, like, stand on the cart and, like, rolled down within the freeway tunnel. Not, not the it's not a freeway the tunnel in downtown LA around Angel's Flight. I remember when we would drive by there, when I was little, I would always tell him, Daddy, Daddy, honk the horn. And the entire time he's honking the horn, you know, just oh, I said echoes. You mean?
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Yeah? Yeah, yeah. And we drove down the windows and it was just, that was, that was my daddy. So he was playful, yeah, very playful. Yeah. I was his flacca is skinny because I was always skinny. He did tell me recently that, um, oh, you're not skinny anymore. I'm gonna call you Gordon, which means chunky. That's the one thing about, about this that, you know, filters,
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right? It's there is,
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I'm not, I can't I'm not even sure if there's any filter left anymore.
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Has he done anything embarrassing, like in public?
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Well, actually, we took him on a cruise week and a half ago, and we went on an excursion. And, you know, we went to see dancing horses. And the the tour guide, you know, as we're in the band driving over, he talks about horses. He just works out horses. I don't even see horses. I grew up with horses. Horses are my ranch.
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Those are the horses I want to see. I was like, oh my god, dad, oh my god, dad. And I had to apologize to him afterwards, I said, you know, I'm sorry if my dad was being rude. He has Alzheimer's, and sometimes he just flirts things out. I'm
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sure the tour guide understood. Yeah, he did.
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He started
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acting like, don't worry about it. It's fine.
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It's fine. He wasn't being rude, but he was, in other words, he made it sound like, I don't care about your horses,
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but yeah, that's now. Cruises are hard. Where did you guys go? Oh, my God, we
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went to Ensenada.
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We left from Long Beach and got to Ensenada on Friday. Got to Ensenada Sunday, and then got back on Monday morning. That was very hard because my mother's 78 you know, she's older too. She's starting to forget things.
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Hopefully, with her, it's just age related, but it was just my husband and myself, and it was like dealing with two toddlers.
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Oh, goodness. So memory loss is not really age related. I mean, they say almost with recall like, if she remembers it later in the day, you know, she can't think of that actor's name right at the moment, but then she comes up with it later. Like, oh, it's, you know, Robert Redford, or whoever. But memory loss is not a normal part of aging. So if she continues to really have memory loss, yeah? You should, like, definitely go get that checked out. Yeah. But So your dad is on a cruise, and I always worry about people with dementia on cruises, because, from what I've never been on a cruise, but from what I hear, like all the hallways look the same they do, yeah, so was there like an issue with him getting lost or or, you know, getting confused which way to go. We had
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one incident where my husband was, you know, at the bar getting himself and myself a drink. And they were both my mom and dad. They were, you know, looking into the ocean and, okay, they're together. So I turned around. I started just standing there waiting for my husband, and then I turned back around, and my my mom is standing right next to me, and I asked her, I'm like, Mom, where's my daddy? Oh, he said he was going to the restroom. Just took a big side. And I said, what restroom Did he go into?
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Like, I don't know. He went into one of these. There's two restrooms and then, like a big hallway in the middle with um, sliding doors. And so my my husband came back, and I said, my dad went to the restroom. So we're not getting both restrooms. One, when we knocked, he said, occupied? Nope, absolutely. That's not my dad in there. And then we saw somebody walk out of the other one, not my dad.
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Oh, my goodness.
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Where did he go?
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So I told him, mom, you stay here in case he comes back. There was this lady in her wheelchair. She said, Oh, I I saw him walk that way. So my husband and I, we each went our own direction to look for him.
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We went in through the dining hall. I asked one of the waiters that we had made friends with on Friday, Noel, Noel, have you seen my daddy? Can't find my daddy like No, Mama, I haven't seen him. So we're walking around looking for him, looking for him. He comes back and he's there with my mother. So I asked my daddy, where did you go? I went to the restroom. What restroom? Oh, through there, through the sliding doors. There is no restroom through the sliding doors. The restrooms are on each side. Where did he go?
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Who knows, my goodness. So that was a honestly. It was a terrifying moment. We went back into our rooms to change into, like, warmer clothes, and I just broke down. I just broke down because it was, it was just so scary. It was just so scary. And I know it's not like he can get off the boat, but it's, it's a, it's a little city in there.
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Yeah, it's a big boat, right? Uh huh, yeah, it's a city in there.
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It's like, just him getting off.
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Was terrifying. And I've I got a little frustrated at my mom, because, like, like, Mommy, remember, you're not supposed to let him wander off on his own,
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right? Like he can't go to the bathroom by himself.
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No, like, you know, walk him to the door and then make sure he's, you know, walks out of the door. You know, you can't just let him walk away. And you turn your head, because then this happens. Did she understand that she did? And we've, we've talked that's why I'm concerned about her too, because we've talked about it.
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And she even says herself that he does wonder, he just wanders off. You know, that was an A I D on him, other than his wallet.
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No, that's I do have to get on on top of that. I need to want to get him
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maybe an ID bracelet,
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yeah, an ID bracelet, yeah. And also a tag, an air tag,
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air tag, yeah, that'd be great, yeah, yeah.
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Either maybe in his pocket, or, I don't know what he, you know, on his tied to his shoelace or something, or in a ski chain, however you can Yeah, is there anything he takes with him when he usually goes out?
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He's still pretty good at, like, remembering his wallet? Oh, good, okay. But I mean, you're not gonna, we're not gonna know when the moment comes where he doesn't right. So we're thinking maybe, like a little necklace or something he can wear all the time and again.
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With the bracelet, something that he can't remove, right
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with you, put it maybe on his non dominant hand.
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Yes, yeah, just no, sorry, that's wrong. Put it on his dominant hand. So that is he right handed or left handed?
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He's right handed, yeah, so then you'd put it on his right hand, because his left hand would have trouble getting it off.
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Yeah. Makes sense. Makes sense, yeah. So on
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his dominant hand, yeah? If he would wear maybe one of those medical or bracelets, or, like, here, does he carry a cell phone? Does he carry a phone on him or not?
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Usually he he does. He does. But you know, the thing with that is, again, we don't know when the time has been found, where he actually forgets it.
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So does he have, like, find my phone? Or life 360 or one of those apps? Yeah, it's called Life 360 you know it's one of these, like location apps or find my phone that maybe you can locate him, although on a bruise is there? Wi Fi,
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well, find no, no, you have to pay for it.
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Yeah, that you have to pay for.
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But so that's why, you know, just in case the air tag, like runs out of batteries or he takes it off, the bracelet comes in handy. The neurologist is actually the one that that gave me that idea of getting him the bracelet, in case you were to lose the air tag.
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Yeah, absolutely. Yeah. That is scary.
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Yes. Does he walk out the door at home?
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He does. I've told my mom and my sister, my nephews that live there. I've told them lots of times already that he can't, he can't be allowed to walk to the there's a liquor store like I'd like to say, maybe 3040, yards from the house, but I've told them that they're not supposed to let him walk alone anymore, because you don't know when the moment's gonna come, when he's gonna walk out of the liquor store and wonder like, oh, poopy, where's home? Right?
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Exactly? Yeah, yeah. That's what they say.
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People don't wander until they do, yeah, right. So you just never know when that will happen, right? When that day will come where he doesn't recognize which direction he came from? Yeah, exactly, yeah, exactly. The people at the liquor store know that he has trouble with his memory.
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I don't know. I don't know. Maybe that's actually a very good idea. I never thought of that of letting them know, because he's there.
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He likes to play scratchers. He likes to play scratcher, so he's in there a lot, so it would be a good idea to let them know in case they see him going the wrong direction. That's a very
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good idea. Or maybe put his ID in his wallet or something.
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Yeah, yeah, but, um, but that was the cruise. Was definitely an adventure.
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Wouldn't a wake up call for everyone, a wake up call,
00:24:23.599 --> 00:25:03.900
definitely. I spoke to my brother about it just recently, actually, on Sunday, my like, I said, I feel like I can't really talk to my sister about it too much, because she's I feel like she's still in denial, you know. But I told my brother that I don't know if it's because she's in denial or because she sees him every day. For the most part, she doesn't notice the changes as much as I do when I see him once or twice a week. But this, this cruise, for sure, for sure, was a wake up call just on how much of a child he is now. Yeah, he really can't be left alone.
00:25:00.539 --> 00:26:09.960
No, like I said, he wandered off. Supposedly, he went to the restroom. What restroom? Who knows what. Also, like we went, we were going to the buffet for breakfast, and I literally had to help him serve himself, because he's like, okay, he started serving himself. And I said, Daddy, you have some of that, but I want some of this, Daddy, you have some on your plate already. No, no, no, I want that. Like, Daddy, look at look at that, and look at your plate. You have it on your plate already. And he's like, looking back and forth. Oh, okay, yeah, you're right. And then, you know, there's four different stations that serve the exact same thing. Then he'd, I'm gonna go to the other area, daddy, it's, it's exact same thing as your and then before I finish talking, he's already wandering off. Okay, so here I go behind him again and again. You know, I'm wanna trying to serve himself something he has on his plate. Daddy, it's already on your plate. No, no, no. Look, it's different. It's not the same thing. Like egg Benedict.
00:26:02.640 --> 00:26:18.900
The egg fell off the muffin, and that was enough to throw him off like he didn't he didn't recognize it. Uh huh, yeah, yeah. And where's the coffee? I want coffee. Where's my coffee?
00:26:15.900 --> 00:26:23.000
We have one coffee. Where's the coffee? Like, turning around like Daddy, Daddy, let's go sit.
00:26:23.720 --> 00:26:40.539
Let's go sit, put your plate down, and then we'll get your coffee. No, but, but I want some coffee. I want some coffee. I have to have coffee with my breakfast, daddy, you'll get your coffee. Let's go put your plate down. I go back to the to our table, and I roll my eyes.
00:26:36.859 --> 00:26:49.240
And my husband like me. I was it's frustrating, and it's, it's emotional, sleep, exhausting too. And he does, gave me the son, like, I'll take care of it.
00:26:49.240 --> 00:27:04.500
So he's like, come on, come on, father in law, let's go get your coffee. My husband, his uh, adores my parents. Absolutely adores my parents. He's, he is like another child for them, and he's also patient.
00:27:04.680 --> 00:27:07.319
So sweet, wow, yes, so
00:27:07.319 --> 00:27:09.599
patient. He's like, come on, father in law.
00:27:09.720 --> 00:27:18.839
Father in law, no, no. Father in law, you can't go there. Well, we went to the on the explosion.
00:27:13.559 --> 00:27:39.380
They had the horses on in the stables. And you know, there was this woman talking, letting us know the history of the horses, what their net worth is and kind of breed they are. And my dad's talking loud to the trainer, daddy, she's talking, you gotta stop talking. Okay? Shook his head and then continue talking.
00:27:35.240 --> 00:27:56.440
Mine Bloody, you gotta and my father's like, swear, father in law, you're interrupting her. I just kept on apologizing. I apologize to the group that was with us. I said I'm so sorry having to tell the whole world my daddy has Alzheimer's, and he like, it's, he can't control himself, you know, he would just that
00:27:56.440 --> 00:28:00.180
hard. Is that embarrassing for you? Or, Oh, how is that?
00:28:00.720 --> 00:28:14.880
You know, it's, I wouldn't necessarily call it embarrassing, not too much, at least not yet, at least not yet, but I it's just a constant apologizing for what he's doing.
00:28:14.880 --> 00:28:31.160
Because I was talking to somebody at work how it's like having a toddler. But if you tell a toddler, sit here and stay here, there's a 5050, chance that toddler will listen to you. And with your dad, he's a full grown man,
00:28:31.400 --> 00:28:31.940
right?
00:28:32.599 --> 00:28:38.240
You know, daddy, stay here, okay? And then, like, oh, there's, there's a fly, he'll
00:28:39.500 --> 00:28:43.420
go follow the fly, distracted easily. Yeah.
00:28:43.480 --> 00:28:52.960
And he would just like, randomly go to the horses and start petting them, like, tapping them on the cheek, like Daddy, back off. No, no, don't worry. I grew up with horses.
00:28:53.440 --> 00:29:10.259
Look at them. They're mild animal. Look at him. And he's like, grabbing their head and shaking their head. He's being kind of aggressive with them, and that was scary, and again, frustrating, daddy, leave the horses alone. No, no, no, it's fine. It's fine. And now
00:29:10.440 --> 00:29:12.299
he's not aware, right?
00:29:13.920 --> 00:29:19.559
It's he to him.
00:29:13.920 --> 00:29:24.680
He's just, he's fine. You know, it's okay. It's, it's, it's a, it's a, it's a good animal.
00:29:24.680 --> 00:29:31.039
They're not, they're to gracious animal. They're they don't have a mean bone in their body.
00:29:28.640 --> 00:29:31.039
They're fine. That can
00:29:31.400 --> 00:29:34.880
touch them, right? They're fine. He's fine.
00:29:34.880 --> 00:29:40.700
He's fine. He doesn't see any no to his memory, or any talking to the guide,
00:29:41.240 --> 00:29:52.059
no and he'll notice sometimes that he forgets like, oh, what's going on with me? I have such a good memory, huh? I guess that happens. I'm getting old. Oh, so he
00:29:52.119 --> 00:29:58.420
has a little bit of insight, like a glimmer of insight. He's surprised that he's forgotten something when he thinks he has such a essay,
00:29:59.019 --> 00:30:01.559
but it's more so.
00:29:59.019 --> 00:30:14.220
We remind him, like, No, Daddy, you know, no. This is, this is the way it happened. Like, oh, really, oh. And that's when he'll it's not necessarily that he'll recognize it himself.
00:30:10.680 --> 00:30:27.920
He'll just accept it. When we tell him, you know, right? He'll just accept it. And there's times where we just, you know, depends on what the conversation is, we'll just go along with it.
00:30:24.200 --> 00:30:27.920
Oh, really. Oh, that's
00:30:27.920 --> 00:30:31.640
good. Yeah, right. So you don't argue with him. That's a really good thing.
00:30:31.759 --> 00:30:45.279
No, it's something I'm working, trying to work with, with my mom and even my sister, they'll argue with him, like, don't, don't argue with him, right? It's just gonna make him my rate, and he's not gonna remember anyways,
00:30:45.339 --> 00:30:47.740
exactly right?
00:30:45.339 --> 00:30:48.220
You're not going to get through to him.
00:30:48.279 --> 00:30:53.380
No, no, you're not just, you know, go with the flow. Just follow along with him, and
00:30:53.380 --> 00:31:05.160
that's it. And do you think they're understanding that, or it's taking some time for them to realize that it's, it's not worth arguing with him or reasoning with him.
00:31:05.640 --> 00:31:07.440
I don't know.
00:31:05.640 --> 00:31:37.039
There's, there's times where, like, if my brother and I are there, we'll tell them, and then they'll, they will calm down, like, okay, they stop arguing with him. And then there's times where, like, well, he needs to know. Like, no, he's not gonna know. You know. You're going to tell him now and then later on he's going to forget. What's the point? What's the point of arguing with him? Right? And there's my mother will say, Well, you know, you don't understand. He's always been like that. Like, okay, well, if he's always been like that, guess what? Mom, it's just going to
00:31:37.039 --> 00:31:41.980
be worse. Oh, so she thinks he's always been forgetful. Forgetful,
00:31:42.579 --> 00:31:59.980
not the forgetful part, but like, the being argumentative. You know, he can be a bit abrasive, sometimes more. So yeah, and she says she's always, he's always been like that. And I'm just like, well, he's just gonna get worse.
00:31:59.980 --> 00:32:39.619
So start to realize that all of the change has to happen among you guys, the family, right? You and your family, your mom, your sister, your brother. It's not going to happen with your dad. He's not going to be able to say to your mom, Oh, would you come with me to the liquor store? You know, no, he'll never be able to do that. In his mind, he can walk to the liquor store. It's not a problem. He knows how to get there. He wants to buy his Scratchers, and he's coming. So it has to be up to your mom or your sister, right to say, Hold on. Hold on. Let me come with you. I need to get something to or whatever. Make something up so that they can accompany him.
00:32:39.980 --> 00:32:40.359
Yes,
00:32:40.359 --> 00:33:05.339
that's what I've been that's what I've told them exactly, exactly. That's exactly what I've told them just, you know, like the boys tell him, like, Grandpa, I want to go with you. I want to buy this, I want to buy that, or buy me. I want you to buy me a chocolate. Yeah, perfect, you know. But again, I don't know if it's that they're in denial, or they just don't think he's as bad as he really is, because they see him every day. You
00:33:05.339 --> 00:33:12.720
know, yeah, it is hard to notice subtle changes when you're with a person every day. I get that, yeah,
00:33:13.079 --> 00:33:19.200
and he has become a little more rude with my mom.
00:33:19.259 --> 00:33:24.500
I noticed like my parents are.
00:33:19.259 --> 00:33:51.519
Have always been respectful with each other, but lately he'll say, like, Oh, you're, I bet you dummy, yeah. And I'll just, and she'll like, give him this look like, surprised and angry. I mean, I'm sure she feels a lot of emotions, you know, hearing that from him, and I just, you know, when I hear, I just tell her mommy, and it's just, just remember, it's a disease. It's not him. It's just a disease.
00:33:51.579 --> 00:33:52.839
That's exactly right, yeah.
00:33:52.839 --> 00:33:59.140
And I'll, you know, all time, like, Daddy don't, don't say that to my mom.
00:33:54.880 --> 00:34:03.059
That's mean, like, oh, oh. And it's like, it's almost like he'll recognize it like, Oh, I'm sorry.
00:34:03.299 --> 00:34:05.400
Oh no, apologize. He will.
00:34:06.480 --> 00:34:21.139
But, and, but that's never been your dad. He's never said things like that to your mom. Yeah, no, no, no, no, not at all. You could say he was always very, very respectful my mom and Mom, that's something that that's me, and it's surprising when we hear him,
00:34:21.320 --> 00:34:28.940
yeah. So he's able to still, like, dress himself and bathe himself. Those things are not a problem.
00:34:29.539 --> 00:34:56.800
Now he, like I mentioned before, he had um, fusion on three discs in December. So ever since then, my mom's she still helps him shower so he doesn't bend down too much. Uh huh. But if it wasn't for that, he'd still be able to but he does dress himself. He brushes his own teeth, he um, brushes his two hairs on his head that he has left. Yeah, yeah.
00:34:56.860 --> 00:34:59.920
That's so he grooms himself, not a problem.
00:35:00.059 --> 00:35:10.920
Yes, no, and is that so like he can go out to the liquor store, like he gets himself up and dressed, ready for the day, takes a walk. What does he do the rest of the day?
00:35:11.219 --> 00:35:19.619
He sits in his room a lot. Unfortunately, he does it a lot in his room. He they do go for walks. You know?
00:35:20.460 --> 00:35:20.960
They go for
00:35:20.960 --> 00:35:25.579
walks around together. Uh huh, they're together, yeah? For those
00:35:25.579 --> 00:35:27.559
long walks, for sure, they they go together.
00:35:27.559 --> 00:35:31.940
And, you know, she kind of holds his arm, so they're kind of holding each other up,
00:35:32.480 --> 00:35:35.480
yeah. Oh, that's good, yeah. I think,
00:35:35.480 --> 00:35:43.480
like I said, my mother, she looks great. She absolutely looks amazing for 78 but doesn't change the fact that she's 78 you know,
00:35:44.259 --> 00:35:52.418
yeah, so the two of them and you. So you work your sister, does she work too?
00:35:47.978 --> 00:35:54.338
She does. So she's not home during that. So it's just the two of them home.
00:35:54.820 --> 00:36:11.519
Basically, yeah, basically, it's just the two of them and it's, I know it's hard on my mom. She just, she doesn't give me specifics. She just says, oh, feeling you, what I what I go through and and I've tried to tell her that she needs help with him, you
00:36:11.519 --> 00:36:16.440
know. And how does she feel about does she recognize that she doesn't think she does, she doesn't think she
00:36:16.440 --> 00:36:38.960
needs help? Yeah, no, she thinks she's perfectly fine. She can handle it, but, um, I don't know it. I know she's going through a lot of stress. Obviously, you know, dealing with him again, it's like it is dealing with a child, because he's not supposed to bend down very much still, and
00:36:38.960 --> 00:36:42.159
he does because of his back. Yeah,
00:36:42.699 --> 00:37:06.480
we, we got him a claw for him to pick up stuff from the floor, and who knows where it is, you know, right? He doesn't remember to use it. No, no. And that's one thing I've told them. I'm like, you can only get so mad at him, because guess what? He's forgetting that he can't bend down, right? You know, he's, he's always been the type like, oh, I can do it. You know? He's always been that type, so, yeah,
00:37:06.480 --> 00:37:10.679
and I'm sure if he was a handy guy, right, he could do everything,
00:37:10.800 --> 00:37:25.159
yeah? So now it's even, it's even worse, because he's literally forgetting that he can't, you know, and that's just something I have to repeat, you know, to my mom, like, Mom, he's he's forgetting. He's gonna forget. Don't yell at him. He's gonna forget.
00:37:25.880 --> 00:37:31.039
Do you think your mom would ever go to, like, a support group for caregivers?
00:37:27.920 --> 00:37:47.380
Because she is the main caregiver, right? She's the primary caregiver for him. Is like, if it were, I don't know if she's speaking, How's her English or just, like, if, let's say it was in Spanish, because the Alzheimer's Association has a whole, I guess Alberto, they have a whole program in
00:37:47.380 --> 00:38:02.880
Spanish. I mean, I can, I know I can find something for her, but honestly, I I don't know if she would. I wish she would. I really do, and I've told her lots of times that she needs to talk to somebody.
00:37:58.780 --> 00:38:04.320
But for her, it's just like, No, I'm fine. I'm fine.
00:38:04.619 --> 00:38:18.480
Maybe if you went with her the first time, like if you got on zoom with it's probably on Zoom, I would imagine. But maybe if you got on with her the first time, just to see what it was like, or attended some program with her,
00:38:18.960 --> 00:38:29.000
yeah, I think it's with her. I think it is gonna have to be one of those things where I'm just gonna have to just do it and say, You're, come on. We're just gonna go.
00:38:29.000 --> 00:38:30.079
We're just, yeah,
00:38:30.260 --> 00:38:36.440
let's go check this out. Yeah. I mean, there might be a program, like a daycare program for your dad.
00:38:36.980 --> 00:38:40.460
They have Alzheimer's daycare programs. Do you think he would participate
00:38:40.460 --> 00:38:50.320
something like that. He I don't think he'd mind, but I don't know if she would want him to go, because, you know, she's his caregiver.
00:38:46.719 --> 00:38:53.440
She's the one that's doing everything for him. She's gonna keep him company, and,
00:38:53.500 --> 00:39:10.260
well, she might be able to go and keep him company the first time or the second time, just to see what it's all about. But like your dad, sounds like a personable guy, right? Like you started by saying he's everyone's dad, he's everyone's grandpa, he's everyone's Uncle, you know, just sounds like a people person.
00:39:10.679 --> 00:39:14.340
Yeah, he is very friendly. Very friendly
00:39:14.579 --> 00:39:23.960
might be worth looking into, I'm not sure. But, you know, they have like programs specifically for people with their day programs, for people with all with dementia.
00:39:24.139 --> 00:39:31.460
He could try it one day a week, like they could probably go together at the beginning and just see how it goes, but just to give her a break,
00:39:31.820 --> 00:39:40.420
yeah? And I would, I personally would love for him to go to one just to get more interaction, yeah, than just television. No
00:39:40.420 --> 00:40:04.500
problem. Yeah, yeah, exactly because they say socialization is key for people who have dementia. So just like the neurologist told you, like, it would be great if family came around more often, that's right, yeah, if that's for socialization, yeah. So if you're in some sort of social distancing. Program. That's what it's all about, right? Engaging with other folks,
00:40:04.800 --> 00:40:33.440
yeah, and we bought him. He used to love playing checkers. He'd spend hours with his friend playing checkers, and we bought him a checkerboard, but he doesn't want to play it. Do you think he remembers how to play it? That's the thing, though. The first time we took it out was in my house, and I feel like it took him a minute to remember how to play it, but then he did, and he played a couple games with my husband, and then with my one of my nephews, one of his great grandkids.
00:40:34.159 --> 00:40:35.539
So I came back to him,
00:40:35.719 --> 00:40:51.219
yeah, I came back, but I not sure where that checkerboard is they took it home and not sure where it is, you know, I've, I've tried telling, you know, my sister that you guys need to play with him also,
00:40:51.519 --> 00:40:53.440
if that, yeah, if they can, that would be
00:40:53.440 --> 00:41:15.480
great. Yeah, I did buy him a crossword puzzle, a book crossword puzzles when we first started with this. And it's called puzzles for grandpa, and it's and it's in Spanish, great. It's in Spanish, yeah?
00:41:09.179 --> 00:41:48.039
No, no, I think, no, I think you couldn't understand how to play it. Yeah? Like, I even did a few. I'm like, you know, come on, daddy, we'll race you do that page, and I'll do this page, and, you know, try to explain it to him. And you can see, you know, I flipped through the pages, and you can see where he actually tried to play with it. But I think it's just, he just doesn't get the hang of it, right? Yeah, I was going to give him my tablet. I have a tablet that's just sitting there to play games. But I feel like he gets, I feel like he's just gonna get frustrated and just say, Forget it
00:41:48.579 --> 00:41:55.780
all right, yeah, learning something new he probably wouldn't be able to do.
00:41:51.639 --> 00:42:06.239
Yeah, like, getting on your tablet, you know, trying to play something probably not going to happen, yeah? Like, maybe if you were there, kind of leading him through it, but,
00:42:08.400 --> 00:42:42.760
yeah? Like, I have the bubble game, you know, the bubble shoot game on my phone. It's like, you have to connect three bubbles of the same color, and then I'll make them pop. Oh, okay, can you do that? No, that's when one of his appointments, I said, Look daddy, maybe you'll like this game. And I went back to, like, the very first, first level. And very easy, you know, you is there's only like, because as the levels go up, you know, there's different colors and more popping to do. But this the first couple levels is like two different two or three different colors, so it's easy to pass.
00:42:42.760 --> 00:42:45.760
And he just, he couldn't get it.
00:42:42.760 --> 00:43:45.579
I told him, Look, you know you, you know, you drag your finger and you see this nine here, and that's going to tell you where to connect the bubble. And he just, he couldn't get it. No, he couldn't do it. Like, even his signature. I mean, I've he forgot his signature. Yeah, he had me write a check for him quite a month ago, and I noticed him on a separate sheet of paper, like practicing his signature. He had this beautiful signature. I mean, my father, he unfortunately, in Mexico, he was he grew up very poor. He didn't have any schooling, so he doesn't know how to write very well. But his he had this beautiful he came up with this beautiful signature where he even did, like a cute little happy face at the end. And he just, he forgot his son how to do that. Oh, goodness. He says he's just like me, Hi, is this okay? I'm like, yeah, it's okay, daddy, just whatever you can do, whatever you can do that. That was a another sub moment where it's like, Damn, he forgot his signature, you know? Yeah,
00:43:45.760 --> 00:43:53.440
that's long term memory he's having trouble with now, is he still writing checks, or is he doing anything with finances?
00:43:53.739 --> 00:43:56.739
He still is. He has to be. He has to be.
00:43:57.699 --> 00:44:01.019
So he's paying bills and things like, he's still paying bills. Uh huh,
00:44:01.559 --> 00:44:09.780
yeah, he's so, like I said, he's still, he's still very lucid, but there's times where he's just like a child, you know,
00:44:10.800 --> 00:44:17.820
you know, do you have to bring the bills to him and say, okay, hey, this one's due. Like this. Someone oversee.
00:44:17.820 --> 00:44:19.440
Maybe you should be overseeing that.
00:44:19.980 --> 00:45:02.280
I don't, or you're not sure if my sister's helping him, or if he's still well enough to keep up with it himself, like it. There's times where, like I said, He's seems very responsible, very in to what, what's going on now and then. There's times where he's just like, where am I, he'll lose sometimes he'll just, like, gives that stare even when he's home. And then whether he's home, he'll do it here when he's at my house. That's kind of heartbreaking to see him like that. We're all having a good time. He's just like staring into space. I give him his moment when he does. And then if it takes too long. Long, then I'll try to snap them out of it.
00:45:02.280 --> 00:45:03.300
Like, Hey dad, you know,
00:45:03.420 --> 00:45:10.500
join here at my place. Uh huh, yeah, can you reorient him like that? I'm like, we're at my place. You're safe. I got you.
00:45:11.099 --> 00:45:29.900
I don't know, to be honest, I don't know if he has ever forgotten where he's at, as far as, like, if he's in my whether he's in my house or in his own house. But don't forget. Like, you know, I made ceviche one time at my house, and he saw me make it from start to finish. He's eating, eating.
00:45:29.900 --> 00:45:46.239
And then he, he's like, Oh, I didn't want to eat anymore, but it's my, my son in law's called, I'm eating so much. Like, why all what's his cooking is just so good I can't help it. Like, and I just, you know, went along with him. Like, oh yeah, Jaime Cook's really good, huh? Daddy?
00:45:43.539 --> 00:45:53.500
Like, yeah, it's his fault. I'm eating so much I can't stop eating, you know. But he's actually, you, yeah, it was me.
00:45:49.539 --> 00:46:29.599
And, like I said, He's Sammy make it from start to finish chopping the shrimp and the veggies and but, you know, his, his son in law is the one that kept that really good City Gym, you know. But like I said, forgetting where he is, I at least I haven't noticed it. He on the drive to his surgery, though the first time had to be rescheduled because there was blood in his urine, and so when we were driving to the hospital, this the second time, he's like, are we going to Kaiser? No, Daddy, you don't have Kaiser.
00:46:29.599 --> 00:46:44.980
Oh, are we going to get your surgery? Oh, I thought I had the surgery done already. Like, so he goes, like, from being really forgetful, like, forgetting that he didn't get the surgery done to being able to pay his own
00:46:44.980 --> 00:46:51.340
bills. It's not interesting, like you just don't know what part of the brain is affected. Yeah,
00:46:52.599 --> 00:47:02.219
yeah, but it's it's nice when to know that he could still do that stuff, right? But then he wanders off and gets lost in the ship.
00:47:03.900 --> 00:47:12.179
Yeah, that's the hard part of the disease. You just don't know. Yeah, how?
00:47:07.320 --> 00:47:25.099
Yeah, you don't know what's going to happen. So that's the roller coaster ride that people talk about, right? You don't know from one minute to the next, and like, the new normal keeps changing. It feels like every day something it could be something else that he's remembering or forgetting.
00:47:26.539 --> 00:47:49.900
Yeah, like he'll remember, quote, unquote, how when he met my mom, he used to wear hats all the time, like a cowboy hats. And my mom turns around like, liar. You never wore them like Mom, yes, he did, and never like my even my my brother, he's like, winking at my mom, like mom
00:47:50.980 --> 00:47:56.320
Exactly. Doesn't matter if you did or you didn't, just say you did. Just say you do.
00:47:56.500 --> 00:48:02.519
Yeah, sometimes the story like, just, he's he's very funny. Sometimes, because he's so blunt. Your
00:48:02.519 --> 00:48:06.539
dad, yeah, since his dementia or he's always been,
00:00:00.000 --> 00:00:12.539
00:00:13.199 --> 00:00:14.099
00:00:14.279 --> 00:00:15.960
00:00:17.160 --> 00:00:27.500
00:00:30.980 --> 00:02:05.280
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