Season 2 - New episodes every 2nd Tuesday of the month!

Episodes

66
June 21, 2022

It’s a Family Affair: How the dynamics of aging impact the entire family

Today Barbara is joined by her friend and colleague Bunni Dybnis. A licensed marriage and family therapist, Bunni worked as an Aging Life Care Manager for years and is now a mediator, helping families of the aging and terminally ill work through bereavement, adjustments and transitions. She tells Barbara about her journey to the field of geriatrics, sparked by a course she took through UCLA’s medical school on death and suicide. Bunni realized then how death impacts the person who dies as well a...
65
June 14, 2022

Caregiving by default and why it's so easy to lose yourself

Today Barbara’s guest is Sandra Hunnicutt. Sandra shares her story of taking care of her husband, Don, a brilliant UCLA professor who was a “man on fire” until 2018, when he began to show signs of memory impairment and was diagnosed with mild-to-moderate cognitive impairment. Sandra was Don’s sole caregiver for four years, until his condition deteriorated to the point that she needed to put him in a facility. She and Barbara talk about her experience along the way; how she “slipped into caregivi...
64
June 7, 2022

Lessons in Caregiving Education

Today Barbara is pleased to welcome David Hart, a professor and clinical psychologist who specializes in dementia and caregiving. David is a faculty member in the Department of Counseling at California State University, Fullerton, and is the director of clinical services at Always Best Care Senior Services in Torrance, CA. David shares his personal story about caring for his grandmother, who was diagnosed with dementia when he was 15. He and his mother did their best, he says, but they didn’t ha...
63
May 31, 2022

"Learning from other Caregivers"

Nancy Tahara joins Barbara to talk about caring for her friend of 40 years. Now 81, he suffers from Lewy body dementia, Parkinson's disease, and REM sleep behavior disorder. He asked her to come take care of him a year-and-a-half ago, and she’s been his full-time caregiver ever since. Sadly, her friend’s condition is deteriorating quickly, both physically and cognitively. They just finished home health (physical therapy) but it didn’t help, so now they’ll start hospice. Nancy talks about how muc...
62
May 24, 2022

A Crash-Course in Caregiving: “It’s been a rollercoaster of figuring things out”

Today Barbara is joined by Evelyn Garcia, who cares for her mother who has younger-onset dementia. Evelyn was living in Virginia when she got a call from her mother’s doctor, saying she couldn’t live alone any longer. When Evelyn flew out to Los Angeles, she realized how bad things were: her mother was paranoid and forgetful, cried all the time, and wasn’t paying bills or taking care of herself. In June of 2020, Evelyn moved to Los Angeles to take care of her. Evelyn and Barbara talk about how h...
61
May 17, 2022

Laughter is the Best Medicine

Dani Klein Modisett is the founder and CEO of Laughter On Call which pairs comedians with Alzheimer’s patients. She’ll reveal the story behind the formation of this brilliant idea and explain why laughter really is the best medicine. Writer-comedian, Dani Modisett, has been performing comedy for over 20 years. She taught the art of stand-up comedy at UCLA for over a decade and has produced numerous live comedy shows all over the U.S. Find more about Dani and Laughter On Call The Washington Pos...
60
May 10, 2022

Learning Caregiving from a Distance

Katie is a new caregiver, taking care of her mother who is in the early stages of “advanced cognitive decline.“ She’s also caregiving from a distance. She’ll discuss trying to navigate through this new experience and how she’s found support for both her mom and herself. Want to share your story? Barbara would love to have you as her guest on Dementia Discussions. Please get in touch! (310-362-8232 / Barbara@seniorcarenavigatorla.com)
59
May 3, 2022

Daily Money Managers as part of the caregiving team

Today Barbara is joined by her friend and colleague Natalie Stanger. Twenty years ago, Natalie started a company to “help seniors do the things they could no longer do or didn’t want to do,” and it’s kept her busy ever since. Natalie talks about how she got into the world of geriatrics and found her niche as a Daily Money Manager (a “DMM”). They discuss all the things she does for her clients, from bill paying and mail management to simply keeping them company: “There’s no formula, it’s whatever...
58
April 26, 2022

Diagnosing Dementia with a Pre-existing Brain Condition

Today Barbara is joined by Heidi Artman, who is caring for her husband, Lee. Heidi first noticed Lee’s memory problems in 2015, but it wasn’t until recently that he received a diagnosis. Because Lee has struggled with bipolar disorder since his early 30s, what was happening in his brain was difficult to diagnose. Heidi and Barbara talk about the complexity of brain disease and the research into whether components of bipolar are linked to a propensity to dementia. Heidi talks about Lee’s conditio...
57
April 19, 2022

The Sad Relief of Getting the Diagnosis

Today Barbara welcomes Denise to the podcast. An only child, Denise says she never saw herself as a caregiver, but when her mother was diagnosed with dementia and Alzheimer’s, everything changed. She and Barbara discuss the complex emotions and transitions involved once you receive the diagnosis – not only for the one who gets the diagnosis but all those who care for them. Denise tells Barbara that hearing the diagnosis was confirmation that her mother was no longer self-aware enough to know wha...
56
April 12, 2022

A gertiatric caregiver’s mission to give back

Barbara and her guest, colleague & friend discuss ethnic and cultural disparities and how money is consistently the biggest barrier to adequate resources and support....
55
April 5, 2022

Caregiving when both your parents have Alzheimer’s Disease

Today Ed Mount joins Barbara to talk about his ongoing journey as a caregiver. Ed’s father died from Alzheimer’s in 2012 and his mother Judy is now suffering from the disease. He and Barbara discuss the different phases of Alzheimer’s and the various caregivers Ed has encountered throughout the years. Through his experiences, Ed shares what he’s learned along the way and what he wishes he’d done differently.
54
March 29, 2022

My wife is taking care of her mom – and we have young kids!

When Adam Steinman’s mother-in-law was diagnosed with Alzheimer’s four years ago, his kids were two and six. Adam joins Barbara to share his experience caring for younger children and aging parents, a phenomenon known as the Sandwich Generation. Adam remembers his mother-in-law as incredibly vibrant and fiercely independent, a progressive thinker who would “always tell you what she thought.” For Adam and his wife, this made knowing something was awry that much more obvious. He and Barbara talk a...
53
March 22, 2022

Memory care facilities don't always want your feedback – no matter how much you’re paying

Today Barbara is joined by Gary Zembow and Marcy Lebovitz to discuss Gary’s mother, Esther. Now 94, Esther was born in Poland, and was the only member of her family to survive the Holocaust. Gary and Marcy describe Esther as bright, happy and cheerful, despite what she lived through as a child. They first remember noticing dementia symptoms after she had anesthesia for back surgery. It was never diagnosed, but they assume it was frontotemporal because she had trouble finding words. They talk ab...
52
March 15, 2022

Caregiving from afar: The importance of building a local team for your loved ones

Paul Spiegelman joins Barbara to talk about caregiving for his mother, Lila, who was diagnosed with Alzheimer’s in 2015. At first, Paul’s father did all the caregiving while Paul, who lives in Dallas, did what he could to support his father (a “caregiver’s caregiver”). As Lila’s condition declined, Paul says he could see the strain on his father. That’s when he knew his parents needed more help. He and Barbara discuss the adjustment that comes when you bring in professional caregivers, and Paul ...
51
March 8, 2022

Caring for a loved one who doesn’t know who you are

Steve Johnson joins Barbara to talk about caring for his wife of 22 years, Bonnie. In September of 2020, Bonnie was diagnosed with mild to moderate Alzheimer’s. He says the onset was radical – they’d taken a family trip in June but by August, Bonnie no longer recognized him. He tells Barbara about how much his life has changed in just two years, and his experience caregiving for someone who is too impaired to understand what’s happening to her. They discuss coping strategies and tactics for care...
50
March 1, 2022

Young Onset Alzheimer’s: The diagnosis neurologists don’t know how to deal with

Are you a caregiver with a story to share? Please call Barbara at 310-362-8232. Today Barbara is joined by Kimberly Cruelle, whose husband was diagnosed with young onset Alzheimer’s six years ago at the age of 47. She tells Barbara about the early signs, starting with memory loss that quickly became severe. They discuss the challenges of young onset Alzheimer’s – when the patient’s age makes it difficult to get the right tests approved, and how often it’s misdiagnosed as anything from sleep apne...
49
Feb. 22, 2022

The dynamics of caregiving for different family members

Barbara kicks off today's episode with a question for you: Would you (or someone you know) like to help other caregivers by sharing your caregiving story on Dementia Discussions? If so, Barbara would love to hear from you! Call or text: 310-362-8232. Next, Barbara welcomes facility placement specialist Stacy Brooks. Stacy’s company, Heart Light, helps place seniors in assisted living facilities. Stacy also knows first-hand how much the right living situation can improve someone's life. An only c...
48
Feb. 15, 2022

7 years into Alzheimer’s: His imaginary life is all day long now

Today Barbara welcomes back Dotti McLean, whose husband Brian was diagnosed with Alzheimer’s disease seven years ago. They talk about how the disease has progressed, and all the things Dotti has learned along the way. Dotti describes some of the physical problems – losing his muscle memory, having a hard time walking, getting dizzy and falling down – as well as the memory decline. She says that Brian is unable to understand basic directions or explanations and lives in his own imaginary life all...
47
Feb. 8, 2022

How Senior Move Managers tackle the complex logistics of moving a loved one

Today Barbara is joined by Marty Stevens-Heeber, founder and CEO of Clear Home Solutions. An accomplished business woman and entrepreneur, Marty tells Barbara why she was drawn to working with older adults. They discuss her work as a Senior Move Manager, a fairly new but growing role devoted to helping families deal with the difficult (and potentially traumatic) experience of moving loved ones into a new living situation. Her company can take over any and all of the logistics associated with the...
46
Feb. 1, 2022

When we were listening to music, everyone else got a break

Today Barbara is joined by Bobbie Schwarcz to talk about Bobbie’s father-in-law, Chuck, who died several years ago. When Bobbie met Chuck, he’d already been diagnosed with dementia. Bobbie describes Chuck as an intelligent, charming, and fascinating man who’d been quite an accomplished musician. As his disease progressed, Bobbie started listening to music with him. When she’d play Marie Callas, his all-time favorite singer, he’d light up and smile. “It was like a light bulb would go off,” she sa...
45
Jan. 25, 2022

Cutting-edge technology designed to help people with dementia and their families

Today Barbara is joined by social gerontologist Benjamin Surmi. As director of culture, training and Koelsch Innovation Lab for Koelsch Communities, Benjamin focuses on seeking the most effective ways to support family caregivers. In the past, he says, most tools were human – nurses, dog walkers, house cleaners, drivers, bookkeepers. These days, thanks to technological advances and COVID, many are virtual. Benjamin shares some of the items in his “Tech Toolbox”: tracking devices that look like w...
44
Jan. 18, 2022

Caregivers vs. the healthcare system: An unbelievable story of perseverance and hope

A lot has happened since Ted Snyder was Barbara’s guest on Dementia Discussions last April. Today he tells Barbara how his wife Rena’s condition has progressed from mild cognitive impairment to late-stage Alzheimer’s; how she is often unresponsive, although she always responds well to music. Unstable on her feet, after Rena fell several times in the long-term care facility, Ted moved her into a small “board and care” in March. When she fell and broke her hip in September, Ted and his family were...
43
Jan. 11, 2022

Remembering a remarkable woman

Today Barbara welcomes back Owen Frances. Owen lost Rhonda, his precious wife of 52 years, to Alzheimer’s disease last year. In a beautiful, heartfelt, and extremely moving tribute, Owen shares memories and stories about Rhonda. He describes a remarkable woman who helped countless others through their grief as a bereavement counselor. “There was nobody who ever met her who didn’t come away better for it,” he says.